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Showing posts from October, 2015

Julia's Frontal Orbital Advancement Surgery

I promised I'd give more details on Julia's next surgery, so here they are. At the end of November she will undergo what is called a frontal orbital advancement (FOA). They cut the front section of the skull, move it forward, and also move the bone of the upper orbit (top section of your eye sockets, for those non-sciencey folk) forward. They take the section of bone from the front of the skull and actually split it into two pieces. They split it by thickness, so they essentially double the surface area of the part of the skull that is being moved. The two pieces will be half the thickness of the original piece, but there is then more bone to work with and to fill in the gap created by moving the skull and upper orbit forward.  The neurosurgeon has assured me that there will be no loss in the integrity of her skull with this splitting of the bone. Apparently, her body will build it up in thickness again and also form new bone in between the pieces they place to fil

Look at these fingers!!

Here they are! The reveal to all of you. These beautiful, tiny thumbs and pinkies. We still have to keep bandages on her hands even though the grafts have taken and healed. We have to use gauze to keep pressure on the new web spaces between her fingers so that scar tissue doesn't grow and pull them back together. We joke that she has boxing gloves on, but the bandaging is nice and minimal compared to what she had before. We go back to the plastic surgeon next week and my fingers are crossed for no more bandaging at all. We don't have to cover her hands with sock anymore so at least she's getting to feel objects with part of her hand, but removing the bandages will be so nice. I feel like she hasn't had the opportunity to see what can be done with her new fingers since they're tightly bound all the time. I wonder whether we'll have to do any physical/occupational therapy with her or if she will figure it out on her own. We've noticed some tin